MRI results

Realizing I forgot to post her MRI results but good news is that her ventricle size (both laterals and 4th ventricle) are down and looking much better.  So at least we know the episodes are not related to shunt malfunction at this point! 

Slightly irritated the nurse called late in the evening and the next morning after she came home because they have to reset her shunts after each MRI and she accidently set them backward- ugh.  Front is supposed to be at 80 and back 60 but she did the opposite- apparently they don't think the setting change is that significant so we will leave as is for now and monitor but might have to bring her back up to have them reset at some point again.

Follow up

Had a chance to speak with Morgan's neurosurgery office today and were discussing the "intermittent Shunt Blockage" theory which he said is unlikely for her to be experiencing.  Apparently this is pretty uncommon but when it has happened usually the patient is slower to recover since the CSF build up and release via the shunt isn't a "burst" of fluid but more slow and gradual.  Morgan seems to snap out of it much quicker and feel better suddenly.  He does think the vomiting/lethargy episodes are very likely related to the shunt or other neurological issues though and we are going to do further follow up. 

I also asked him about slit ventricle syndrome (yes, I have been googling) since her symptoms seem very close to the description- intermittent intense headaches, varying degrees of lethargy, with or without nausea, and vomiting that last anywhere from 10 to 90 minutes.  Based on her last scans he doesn't think either because her ventricles are still quite large.

So...next week another MRI to take a look and setting up an appointment to see a neurologist with her neurosurgeon also to check out if she is having any seizures that may cause. 

Intermittent Blockage??

Its after 10pm and we just got the kids to bed and eating dinner...spent another evening in Children's ER but at least we came home!  We ventured out with the kids to a restaurant for dinner with family and Morgan fell a sleep in the car on the way there - not unusual since apparently she had a short nap today.  I thought she was just being slow to wake up after we arrived but shortly after we were settled at the table and ordered Morgan food she started vomiting :(

Of course we debated again is she just sick or do we need to go to head to the ER... a few minutes later more came up so that solidified our decision.  She was whimpering for a bit, glossy eyed and very sleepy and then fell a sleep again on the way up to the hospital.  Were checked in and shortly after she got a room in the ER she perked up, wanted to walk and play - like a new person!  The Doctor saw her and we agreed she didn't need scans, IV, etc. since now she is acting fine and he advised to take her home and monitor her every few hours through the evening.  No fever and she doesn't seem to be sick but we were told it is possible she might be having intermittent blockages of the shunt line.  So maybe she is constipated or stomach full and this causes the shunt line in her abdominal cavity to block temporarily and the vomiting would relieve? Interesting and might explain the two recent episodes of this.  Relieved and hopeful she escaped again without intervention.  Can't wait until she is old enough to tell us what she is feeling!